Neutropenia is a stronger force

Well I know I haven’t written for a while but I was going to write about the wisdom teeth pain I’ve been having. Last treatment my wisdom teeth hurt a little bit but this time it’s been a lot worse, it’s been a chronic pain for 4 days and I’ve been taking paracetamol like they’re sweets.

I came home from Di’s yesterday and felt really cold, so I went to bed and still couldn’t warm up so I had a nice hot bath. That felt amazing but I felt a bit dizzy afterwards so went back to bed. After a while I got too hot so took my temperature and it was 39 so I rang the chemo helpline and they said to come in.

So I had to ring my mum to ask if she could take me in. This was around 9pm and by the time we got in it was 10pm. A friend of the family had also come in and she looked awful so was a bit shocking.

I had my bloods taken after about an hour and had to wait about 3hrs before the doctor came to see me. I felt rough as a badgers bum, my teeth were killing me and they couldn’t give me anything.

My temp had come down to 37.5 so a lot better. I thought I’d be ok then.

Around 1am I was told I would have to stay in as my white cell count was so low. I was gutted as I wasn’t expecting it.

Around 2am I got taken up to the ward and there was some emergency going on so nurses were running left right and centre so I was shown to my bed and then had to wait 40mins before they came to check my vitals. My temp was still low and they gave me some painkillers so eventually I settled in to try to sleep.

Hmmm that didn’t last long, snoring, coughing, footsteps and talking kept me awake most of the night. They woke one lady at 5 and then the rest at 6.

A few hours later I finally got some painkillers as my teeth were killing me. I’ve had antibiotics (on my second dose now) and have been on a saline drip for the past 4 hours.

The doctor examined me and checked my teeth, she’s going to refer me to the dental team so they can see what’s happening with my teeth. They mentioned X-rays but I’m still waiting to hear on that.

So I may be in for a few days, I’m not sure. The nurse said its likely while my neutropenia is still low I will have to stay in.

I’m hoping to be out in time for sat, as I’ve organised a Christmas Party and will be gutted if I have to miss it 😦

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Neutropenia 1 Me 1

Well after my last post I was waiting to see if my white blood cell count would come up enough on Monday after a re-test to be able to get my 2nd Chemo treatment, so after a weekend of isolation and keeping myself to myself in my flat and feeling pretty miserable I might add lol!  But it worked!

Apparantly my white blood cell count was only just acceptable, but I had my 2nd treatment on Monday and so far the new anti sickness pills that they gave me have done the trick. I havent been sick at all so far, the pills I was given are called “Emend” which is an “aprepitant” which apparantly blocks the nausea and vomiting signals from the brain to the stomach.  Well fair play its worked so far, I had my last tablet yesterday which lasts 24hrs so at 2pm today it should have worn off and then we will see what happens!

I had a long day on Monday as I had to arrive earlier than planned to get my blood test re-done, this was done very quickly but then I had to wait about 4 hours until I actually got my chemo treatment and about 2.5hrs of that was waiting to see if the blood tests were ok.  For some reason I was taken to the Private Wards to have my chemo, which was nice as I had a private room, a tv and a nurse all to myself.  Apparantly if they have any space they try to take some patients from the normal system to speed things up so I think I was just lucky that day.  It did make the process go a bit easier being able to watch tv and chat to the nurse.

Since then I havent really done very much, today is my first day of actually getting up and being dressed rather than lounging in my pjs.  I think I have scared a few people with my balding head, so if I hear someone coming, I try to cover up, but there has been times when I havent had a chance lol.

In all Tuesday wasnt a bad day in health terms, I was up and about most of the day, I did have stomach cramps and diahorrea for a short time, but thats hasnt come back thank god.  Weds I did feel pretty nauseaous for most of the day, it would come in waves and some stronger than others.  Sometimes eating or drinking would make it go away and other times it would make it feel worse.

Alot of people warned me about having a metallic taste in my mouth, I dont think I have had that yet, but I have lost a lot of the taste when eating or drinking, everything tastes bland or not what I thought it would taste like.  I made a whole load of soups at the weekend and I flavoured them to match my taste, but god knows what it will actually taste like for someone with normal taste 😛

Its flipping cold out, so my poor little baked bean head is feeling it a bit, woolly hats all the way for me I think!   Its my works Christmas party tomorrow night, it will be strange seeing everyone as I havent seen them in a month and I will be going as a baked bean head, I could wear my wig, but I am not sure about it, if Di can make it, then I may feel more confident wearing it, as I need help getting it to look right, if she cant make it then I will wear a bandana and hope it looks ok.  I am sure it will get a few good meaning slaps along the evening 🙂

Well thats it for now, cant think of anything else to write 🙂

Neutropenia 1 Me 0

I had my blood tests on Friday to find out how I was doing and if I was ok for my second chemo treatment (tomorrow/Monday) and I was gutted to learn that my white blood cell count was too low, aka neutropenia.

I was advised to come back on Monday morning early, have my blood test taken again and see if its improved. If not then my chemo treatment will get put back.

The Dr advised I take it easy over the weekend, stay indoors, avoid anyone with coughs & colds and avoid public places.

BOOM there goes my weekend plans with Di. 😦 Gutted! I walked out of the hospital and got into the car and burst into tears. I was so looking forward to seeing Di, we had planned on going shopping in Birmingham, a family meal on Saturday and I also had my best friends sons 8th birthday on Sunday late afternoon.

All of that had to be scrapped 😦 I couldn’t go to Di’s as her son had a cold, she couldn’t come to me in case she had her sons cold. I couldn’t go to Harrison’s party as a load of kids and family would probably be a cold/germ haven.

So I took the decision to isolate myself for the whole weekend. I kept myself busy Friday evening and Saturday daytime. Saturday was a making soup bonanza. I made chicken & vegetable, roasted vegetable and cream of mushroom soup. I had a good dollop of each and thought they tasted yummy.

But afterwards I thought that my taste buds are shot to pieces, what may found good to me may be disgusting to normal people lol. No one else has had a chance to try it yet thank god.

Saturday evening I admit I struggled, I knew Di had her family coming round and I knew she would have a blast with them as they are a very entertaining family 🙂

I watched tv but couldn’t settle, I felt stir crazy!

Sunday I woke with yet another headache. A tight band around my head. I got up and pottered and soon felt worse and was sick a few times so went back to bed.

A few hours later I felt a bit better so tried my chicken & veg soup. That stayed down so I rested up and then packed to go to mums in case my treatment went ahead.

I called in to drop Harrison’s birthday present off and found that hard as I stayed in the hallway and waved through the door at the family but didn’t go in so Reece, Sarah & Harrison came into the hallway. It was lovely to see them, I got a bit upset talking about the weekend and tmw. They were lovely, I couldn’t ask for better friends, they rock!

I didn’t stay long so came on over to mums where I’ll stay for a few days if my treatment goes ahead.

I admit to finding this weekend hard, it’s the first time I have had to miss out on something that’s hit home so much how even though I have felt ok pretty much my immune system is shot to pieces and I need to be more careful.

Ok lesson learnt, but please let my treatment go ahead else this weekends isolation will have been in vain xx