Well the last post was about my last treatment of chemo and so i was very happy about finishing chemo but as per most thing with chemo its not always over when you think it is.
Saturday I didn’t feel too bad, Sunday morning I was ok but by Sunday afternoon I started to feel very nauseous and tired. Monday I didn’t get out of the flat apart from a brief walk to some grass to let lily out. I was glued to the sofa, dozing on and off all day. Tuesday I felt a little better so was up and about and Lavinia and Caroline came to see me which was nice. Then I went out for a meal with Mum & Ron as I’d booked a meal at a local pub a few weeks before as I’d been given a Living Social voucher for a meal for two etc. The meal was lovely and the Every Voice Choir were performing there that night which was good as my friend Libby is in it and I am signed up to join them next term, so felt it was nice for Mum and Ron to see what I was going into.
I got home about 10ish and felt fine, pootled about and went to bed.
At 2am I woke up with really bad stomach pains and stomach cramps, I then spent the next 30 mins with an upset stomach and I’d never had anything like that before, I thought my stomach was trying to tie itself in knots! I thought it could have been a reaction to the amount of garlic I had eaten for my meal as I’d had creamy garlic mushrooms and then haddock goujons with a garlic dip, which was a lot stronger than I was used to.
So I finally got into bed and was there for a few minutes before I had to rush off again.
After that I can’t really remember if I got really cold then or whether that was later, but at some point I felt so cold and was shaking so hard I was actually scared. I couldn’t get out of bed to try and put some more clothes on, my feet felt like blocks of ice and my head was freezing too.
I knew I should have rung the chemo helpline, but to be honest I was scared, I didn’t want to be told that I had to go in, I knew if I went in they would need to take blood tests and it would be likely that I would need a cannula put in and the mere thought of this made me physically sick. Plus it was around 4am and I knew that if they said I had to go in, I would have to ring and wake either my sister, my mum or dad to take me in as I wouldn’t be allowed to drive myself. So I tried to ride it out.
I remember at one point trying to cuddle lily for warmth but she felt cold, so I knew I must have a high temperature as normally she is a really good hot water bottle, she radiates heat big time 🙂 Even lily got fed up that night of me trying to cuddle her as I was shaking that much and my teeth chattering, it must have felt like cuddling a pneumatic drill 😀
Eventually this stopped and I started to warm up and managed to drift off to sleep, I then work just before 6 in a pool of sweat, I felt a bit more awake so took my temperature and it said 39.3 which I knew wasn’t good. I waited a few mins and did the same in the other ear. 39.3 bollocks!
I was still too scared to ring the chemo helpline, so text my sister as she was normally awake around 6 and she was, I told her what was up and she rang me straight back. She told me I had to ring the chemo helpline and I got upset saying I was scared that they would keep me in and I’d need a blood test etc and just saying it out loud made me heave and I was instantly sick… (Poor Lavinia had the phone but down on her at that point!) She gave me a few mins and then rang back and said I had to ring the chemo helpline so I said I would.
I rang the chemo helpline and explained what had happened and was told off for not ringing in the night, and that with my temperature being what it was I really needed to be in with them within the hour. I explained that I would try but my family didn’t live that close they they were all about 20-30 mins away. (It’s times like this when I do feel very aware of living on my own and although I have the most amazing friends in the world, ringing them at some ungodly hour to take me to hospital just seems too much)
Lavinia rang me back and I updated her, she said she could take me in but wouldn’t be able to be with me within an hour, so I rang mum, she was awake and up thank god, but I knew she had a busy day planned with taking my great aunt to a specialist, so she said to ring dad. I rang dad but couldn’t get an answer. Mum then rang back and said she was on her way, then dad and Lavinia both rang (one on landline, one on the mobile) so I was able to explain mum was on her way.
This is one thing I hate about what is going on, feeling vulnerable and not able to do things myself. I hate having to put my family and friends out and calling upon them to take me into hospitals etc I feel really guilty and I know I can’t help it but it doesn’t make it any better.
Well mum arrived and we got to the hospital just after 7. We knew we had to go in through A&E but Lordy lord, I’d forgotten how far it was in the maze of the hospital to find Lilybrook Ward, which is the chemo helpline area. I was quite out of puff by the time we got there, they explained they were full up in the main helpline area so I was put in a small side room with 3 comfy chairs in so Mum and I went in there.
Well they came to take my bloods and the nice nurse who did it remembered me from a previous visit and knew I had problems with my veins and as she had problems herself with giving blood etc, she knew some little places to try so managed to get one on the second attempt. It didn’t hurt and it didn’t upset me, so I was happy.
A bit later they came to put a cannula in and I was sick again, so they gave me some time and came back, the first attempt failed so the cannula expert was sent in. She had to go in to my hard veins so that did hurt alot but I was relieved she got in and was able to use the cannula. She hooked me up to antibiotics and so I had to have all of that then they switched it to saline and I don’t know what happened but feeling the saline go in made me sick again. It was cold and just made me feel really bad.
Eventually it settled down and I had to let that go in. Now I’m getting a little hazy as I wrote the majority of this a few weeks ago and had to stop as it felt a bit wierd and I felt sick.
Basically I ended up having to stay in over night and had 3 litres of saline pumped into me. I was up and down like a yoyo in the night going for a wee as my body isn’t used to all that fluid lol.
I was told I could go home the next day but wasn’t allowed to go home on my own so I went to mums for a few days.
Well that’s it for now. I need to move on to the next chapter… Radiotherapy!!